Damian is an amazing six-year-old boy with Smith-Magenis Syndrome. He cannot be explained in a short paragraph - just as no person with SMS can. We view life with Damian as an adventure - a difficult and wonderful adventure.
Because SMS is caused by a missing piece of a chromosome, it affects every aspect of Damian's development - physically, behaviorally and emotionally. Those with SMS will never live unassisted nor ever be 'cured.' The Smith-Magenis Research Foundation seeks to fund scientific research on the syndrome in order to give those with the syndrome and their families the best quality of life possible.
Please read more about our adventures with Damian here.